Presenter Resources

Tiffany Lohwater
American Association for the Advancement of Science

Many Experts, Many Audiences: Public Engagement with Science and Informal Science Education. A CAISE Inquiry Group Report
This report was developed in 2009 and describes how Public Engagement with Science (PES), in the context of informal science education (ISE), can provide opportunities for public awareness of and participation in science and technology.

Building with Biology: Multi-Site Public Engagement with Science - Synthetic Biology (Innovations in Development)
This project is aimed at pushing beyond traditional modes of communication with public audiences rooted in “public understanding of science” into the mechanisms and perspectives associated with “public engagement with science.” In doing so it works to create conversations in science museums among scientists, engineers, and public audiences about synthetic biology, an emerging research field. In addition to discussing what synthetic biology is and how research is carried out, researchers and public audiences will explore personal and societal values and priorities, so that both groups can learn from each other. This project runs from October 1, 2014 to September 30, 2017. 
Poster Presentation: http://www.informalscience.org/sites/default/files/20160121_MSPES_CAISE_poster_DS_Rev_Compressed.pdf

Alberto Cairo
University of Miami

The Truthful Art: Data, Charts, and Maps for Communication
In this follow-up to The Functional Art—Alberto Cairo’s foundational guide to understanding information graphics and visualization—Cairo explains in clear terms how to work with data, discover the stories hidden within, and share those stories with the world in the form of charts, maps, and infographics. In The Truthful Art, Cairo transforms elementary principles of data and scientific reasoning into tools that you can use in daily life to interpret data sets and extract stories from them.

Infographics the Right Way-a Truthful Art
In this video from the Visual Storytelling Institute, Alberto Cairo introduces his new book The Truthful Art by presenting actionable best practices around infographics and data visualization. These include: the elementary principles of visualization and infographics, visualization tools, and the four core principles of good infographics.

Michelle Meade
University of Michigan

The expert patient and the self-management of chronic conditions and disabilities
This chapter reviews theories, programs, components, and issues that inform or support the development of patient expert and self-management skills. These skills are reviewed to make useful suggestions for rehabilitation psychologists.

Clinical Trial of a Serious Game for Individuals With SCI/D
In regards to rehabilitation, this study’s findings reveal the importance of the concepts of personal responsibility and control over one's health and life as a whole. After selecting an innovative approach for program implementation, the authors stress the high cost of care delivery as well as lack of health care access that place an obstacle to necessary care for disadvantaged populations with Spinal Cord Injury (SCI) living across the United States.

Resilience and Happiness After Spinal Cord Injury: A Qualitative Study
This study explores factors associated with resilience among individuals with spinal cord injury (SCI). The results show that individuals with SCI attribute psychological factors such as happiness, resilience and successful adjustment to personality, good social support, and a spiritual connection.

Eric Maslowski
University of Michigan

Visualization Hubs: Moving from Experimentation to Scalable Service
In this project, Maslowski and colleagues explored visualization resources for research data involving analysis, scholarly publishing, learning, and teaching. They identified practical solutions to engaging the academic community in prioritizing processes and resource allocation.

A Natural User Interface for 3D Environments
This poster explores methods that help create a 3D interface to allow the user to work with data interactively via their physical body instead of using a keyboard and a mouse. The interface was designed using Microsoft Kinect and the Michigan Immersive Digital Experience Nexus.

Joy Hammel
University of Illinois at Chicago

Getting to Inclusion: People With Developmental Disabilities and the Americans With Disabilities Act Participatory Action Research Consortium
The Americans With Disabilities Act Participatory Action Research Consortium studied trends in community living, community participation, and work and economic participation using participatory action research method to help ADA centers and community stakeholders address disparities and promote participation of people with disabilities in their communities.

Environmental barriers and supports to everyday participation: A qualitative insider perspective from people with disabilities
This study uses qualitative analyses of transcripts to describe environmental factors that influence everyday participation of people with disabilities. The results indicate that participants with disabilities feel that the impact of the environment on their participation at immediate, community, and societal levels should be evaluated.

Aging and Developmental Disability: Current Research, Programming
This book, edited by Joy Hammel and Susan M. Nochajski, offers both research studies on developmental disabilities and a literature review of effective methods for life planning courses. In addition to the relevant research, Hammel and Nochajski provide important resources for disability-related services for therapists and other professionals who play and important role in educating individuals with disabilities about available resources.

Lex Frieden
Independent Living Research Utilization Program (ILRU)

The Impact of the ADA in American Communities
In conjunction with the ADA Participation Action Research Consortium, Lex Frieden created a non-scientific survey to measure the ADA’s impact on individuals with disabilities and the broader disability community after 25 years. This survey polled 725 participants, representing more than 600 communities across all 50 states as well as three of the five U.S. territories. Survey findings identify ongoing and emerging challenges and areas of opportunity.

Mike Jones
Shepherd Center

Activity-based therapy for recovery of walking in chronic spinal cord injury: results from a secondary analysis to determine responsiveness to therapy
The purpose of this study was to gain insight into the treatment effectiveness of activity-based therapy (ABT) that varies among individuals as assessed by secondary analysis of data obtained from a clinical trial. It was found that ABT has the potential to promote neurologic recovery and enhance walking ability in individuals with chronic, motor-incomplete SCI.

Making the shift: Improving SCI outcomes with enhanced person-centered care
The Shepherd Center is beginning to share the results from a three-year research project on the outcomes of an enhanced person-focused care initiative (including spinal cord injury peer mentorship) and how those strategies can be replicated elsewhere.

John Morris
Shepherd Center

Use of social media during public emergencies by people with disabilities
The study offers an explanation of how and to what extent people with disabilities use social media during public emergencies, which can help public safety organizations understand communication needs and plan communications strategies accordingly. Survey data on the use of social media indicate that effective emergency communications strategies need to rely on multiple media types and channels to reach the entire community.

Wearable Computing Solutions – M-Enabling Summit – Conference and Showcase 2016
This PowerPoint from the 2016 M-Enabling Summit Conference and Showcase is an introduction to wearable technology, offering examples of wearable technology as well as different characteristics that make wearable technology successful. Likewise, it also offers data on wearable technology usage and explores stakeholders’ varying roles in ensuring successful device adoption.

Kami Huyse
Zoetica Media

How to Use Social Media, Win Business and Find Influencers
This book features 140 tips intended to provide the reader with guidelines for improving your organization’s public identity. Strategies include working with influencers, having an authentic approach, handling online crises and more.

A Commonsense Framework for Social Media Measurement
This whitepaper focuses on social media measurement and its importance to outreach programs. Areas of interest include, how to set benchmarks, what should be measured, and why it matters. This paper is excerpted from the book, Welcome to the Fifth Estate, by Geoff Livingstong, one of the founders of Zoetica Media.

Linda Nicolson
Ontario Ministry of Education

Research and Evaluation Strategy, Ontario Ministry of Education
Presented by Julia Lalande and Linda Nicolson at the Canadian Knowledge Mobilization Forum, Ottawa, June 19-20, 2012. This presentation outlines key knowledge mobilizations mechanisms used by the Ontario Ministry of Education, as well as the opportunities and challenges that they have encountered.

Sofya Malik
Ontario Ministry of Education

Knowledge Mobilization in Ontario
This thesis focuses on Knowledge Mobilization (KMb) and Education Organizations in Ontario.  This study uses a multi-case design drawing from the Knowledge Mobilization literature. This study also offers ten challenges to KMb, including an analysis of strategies, organizational mandates, and dissemination mechanisms.

Madalyn Sklar
The Sklar Agency

Twitter Chats – The Place Where Everyone Knows Your Name
In this blog post, Madalyn Sklar introduces readers to the world of Twitter chats, and explores the benefits that these chats have to offer. Sklar uses the twitter chat that she herself hosts (#TwitterSmarter) as an example, offering testimonials from #TwitterSmarter attendees.

How I More Than Doubled My Number of New Twitter Followers In One Week
Madalyn Sklar shares her strategy for gaining new followers on Twitter, and explains how she uses SumAll – a web application for social media data analytics – to monitor and drive her Twitter activity.

Twitter Profiles
This document accompanies the Twitter Basics 101: Webinar by Madalyn Sklar on October 19, 2016, and lists hashtags of organizations she highlighted during the presentation, as well as those of other disability-oriented Twitter users.