Policy Portal: Directory of Consumer Organizations

The Policy Portal is a directory of consumer-oriented organizations NIDILRR grantees can use to promote their research findings and connect with organizations included in the directory. The Center has worked with the Association of University Centers on Disabilities (AUCD), the National Council on Independent Living (NCIL) and The Arc on the continuous development of the directory.

To be listed below, an organization has met criteria that include it being

  • national in scope
  • engaged in policy discussions with other disability-oriented organizations and/or policymakers about legislation to improve the lives of people with disabilities, and
  • free of commercial interests.

These organizations are therefore well-positioned to apply research findings in their efforts to improve policies that affect the lives of people with disabilities and their families.

Each year, the Center on KTDRR reaches out to the organizations requesting information on their policy priorities. If an organization indicates interest, KTDRR then seeks to identify recent NIDILRR-funded publications that address those informational needs. Then KTDRR shares summaries of the research with the organizations and connects the authors with the organizations’ contact to help foster communication between the NIDILRR researchers and that member of the disability policy community.

NIDILRR grantees and any users may use the Search Function below to narrow the list of organizations by “NIDILRR Outcome Domain” or “Disability Type”.

If you are from a disability advocacy or consumer organization and would like to be added to the list or have your organization’s information updated, please contact us at ktdrr@air.org for more information about our criteria for inclusion.


National Association of Councils on Developmental Disabilities (NACDD)

National Association of Councils on Developmental Disabilities (NACDD) is an outcomes-oriented, mission-driven organization. NACDD leads the way in advancing issues that improve the lives of people with DD and their families by actively listening to all stakeholders, identifying and exploring emerging trends, and proactively reaching out to collaborate with a variety of leaders and organizations to develop effective solutions. NACDD’s values include: Self-Determination, Inclusion, Diversity, Learning, Innovation, Collaboration, Communication, and Accountability.

Website: https://www.nacdd.org/

Address: 1825 K Street NW Suite 600, Washington, DC 20006

Phone: 202-506-5813

Contact: Steve Gieber, President

E-mail: info@nacdd.org

Disability Type: Developmental/Intellectual disabilities

NIDILRR Outcome Domain: Americans with Disabilities Act (ADA), Community living and participation