Policy Portal: Directory of Consumer Organizations
The Policy Portal is a directory of consumer-oriented organizations NIDILRR grantees can use to promote their research findings and connect with organizations included in the directory. The Center has worked with the Association of University Centers on Disabilities (AUCD), the National Council on Independent Living (NCIL) and The Arc on the continuous development of the directory.
To be listed below, an organization has met criteria that include it being
- national in scope
- engaged in policy discussions with other disability-oriented organizations and/or policymakers about legislation to improve the lives of people with disabilities, and
- free of commercial interests.
These organizations are therefore well-positioned to apply research findings in their efforts to improve policies that affect the lives of people with disabilities and their families.
Each year, the Center on KTDRR reaches out to the organizations requesting information on their policy priorities. If an organization indicates interest, KTDRR then seeks to identify recent NIDILRR-funded publications that address those informational needs. Then KTDRR shares summaries of the research with the organizations and connects the authors with the organizations’ contact to help foster communication between the NIDILRR researchers and that member of the disability policy community.
NIDILRR grantees and any users may use the Search Function below to narrow the list of organizations by “NIDILRR Outcome Domain” or “Disability Type”.
If you are from a disability advocacy or consumer organization and would like to be added to the list or have your organization’s information updated, please contact us at firstname.lastname@example.org for more information about our criteria for inclusion.
Found 1 organization matching your search.
United Spinal Association (USA)
United Spinal Association is a national 501(c) (3) nonprofit membership organization dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), and providing support and information to loved ones, care providers and professionals. USA believes no person should be excluded from opportunity based on their disability. Its goal is to provide people living with SCI/D programs and services that maximize their independence and enable them to remain active in their communities.
Address: 120-34 Queens Boulevard #320, Kew Gardens, NY 11415
Contact: Vincenzo Piscopo, President & CEO
Disability Type: Physical/mobility-related disabilities
NIDILRR Outcome Domain: Community living and participation